Wednesday, June 12, 2013

Day 14

Official Update: Dallin was on the trach mask all night last night until about 3 am- not bad for his first time of trying at night. He had a repeat CT scan this morning and everything looks good. The nurse said Dallin was pretty restless all night. The trach doctor is pleased with how he's doing though. Still trying to figure out insurance and transportation and rehab centers- right now we are leaning towards Phoenix at Barrows but trying to figure out transportation costs- it's crazy. He doesn't have an anticipated discharge date but they are thinking within a week if he doesn't have any other complications. Doctor said he could probably be off the vent completely within 24-48 hours. As long as Dallin is progressing he can be accepted straight to a neuro rehab center but he keeps falling asleep in PT so he needs to STAY AWAKE!  
Also, again I want to reiterate that with almost 25, 000 people following the Facebook page we are overwhelmed with your love and support. We thank you from the bottom of our hearts. Tara and TJ have done an incredible job with keeping everyone updated. (Which I am gladly using for this blog) and are responding to all the posts. We couldn't be more touched and grateful for their sweet service.We are so appreciative of each of you and the messages you share with us!


Dallin still needs a little help with holding his head up. You can see he likes to have a ball in his hand. It's soothing to him and it keeps his hands from trying to pull out his trach and PEG tube. I'm so grateful for all of the support of our families. 


 Dallin doesn't move his left leg still, but I thought it was so cute the way he crossed his right leg over his left. He seems relaxed, without a care in the world. In some ways it's probably good he doesn't really know what's going on.

Message from Clayton: 

I've been with Dallin for the past 2 days and I wanted to share some of the tender mercies we've seen. 
Janae had her 14th birthday on June 10th. She had said that the best birthday present ever would be Dallin waking up. The day before he opened his eyes and has spent alot of time awake and trying to communicate. To say the least Janae had a great birthday. 
We traveled back to Tucson on the 9th and attended the Texas Road House benefit dinner for Dallin and celebrated Janae's birthday. I want to thank everyone for showing up and showing your support. The money raised was great but even greater was the support you showed by simply showing up. 
I am now back at the hospital and he has shown some great improvements. He has been very active and has been trying to pull his tubes out. Lacy, one of our great nurses, had the idea to give him a ball to hold and now this ball has become his "Wilson". He now leaves his trach tubes alone and has his security ball. Last night I looked at Dallin and asked him to "Throw me the ball?" He raised his arm and concentrated and "threw".  He actually dropped the ball towards me and smiled. He watched the NBA Finals and was happy that the Spurs won. He has a small U of A Basketball and I showed him the ball and asked him "What is this?' He whispered,"Arizona Wildcats". Today Tanner brought his iPod and we plugged the ear buds in Dallin's ears. He immediately started mouthing the words to the song "Pickup Man" and had a big smile on his face. 
While these are small things, they are small miracles of which we know the source of these miracles. Through your faith and prayers and a loving Heavenly Father all things are possible. Thank you. Our next goal is to get him to Arizona for Neuro Rehab at Burrows Institute in Phoenix.
Thank you,
Clayton


Dallin sleeping with his little "Wilson".


Message from Tara: 


One of our Marana High School buddies, Bobby Weigand, sent a pretty cool package in the mail! This is what the note said, "Dallin- You have truly become such an inspiration to so many people. After sharing your story at work, the University of Washington basketball team and Isaiah Thomas of the Sacramento Kings wanted to help me make sure you woke up with a few things to know we are all thinking and praying for you. Keep fighting Dally boy, we are all behind you!" Thanks so much Bobby- this is AWESOME!!!

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